Unroutinely routine

My Spin For Kids campaign. Thank you.



Another many-downs-and-a-few-ups week.  Looks like we're in a new phase - maybe (just maybe because truly we don't know and sometimes things change by the minute).  In this new phase Liam is mostly sleeping or with her eyes closed.  When she's not, she often complains and moans.  Now, not all moans and OOOWWWWW really mean OOOWWWW.  It may mean 'role me over' or 'read me a book' or 'I need company' - even if it's in the middle of the night.  And sometimes they really do mean that she's in true pain.  

Sunday night - Monday early AM:
Out of pain screams like that we never heard before.  Never!  Liam's in what looks (eh, sounds) like extreme pain.  But we don't know where the OOOWWWWies coming from.  There's not much we can do except for pumping more pain meds into her and try to comfort her.  
I apologize, but it seems like my words are missing the target again.  They are not articulated to describe what she's really going through (and us too, to an extent).  And sometimes I feel like my words are not good enough for Liam either.  What do my attempts at comforting her worth when she's under so much pain?  Sometimes I feel that if she could she would have smacked me and tell me to get the hell out of her face.  "What do you know about pain" is what she might have said.  Instead, she just says OOOOOOWWWWW and NO, NO, NO and EEMA.....I don't feel well, I DON'T FEEL WELL, I DON'T FEEL WELL.  

Monday:  partly cloudy.  Periods of discomfort but also times when she's just very quite.

Tuesday:  BRIGHT AND SUNNY.
And suddenly Liam is well again (I'm told, while I'm at the office, missing all the fun).  She's smiling, talking, even driving her chair.  It's beyond amazing and unbelievable.  By the time I get home I still see traces of that good mood, but she's tired.

Tuesday night however, a 180 degrees turn around.  OOOOOWWWW OOOOWWWWW OOOOWWWW all night long.  Go figure.  (Now, once again, too poor of a description.  I don't know what a short word combination of "OOOOWWWW all night long" means to the reader of this blog.  You have to be there for every minute to truly understand it.)

Wedbesday:  Some OOOWWWs but not too serious.  She's very sleepy.

And this is pretty much the new phase we're in.