Liam is home

My Spin For Kids campaign. Thank you.


It's not that she's so much better from the hospital - only that there's nothing they do that we can't do at home.  Right now she's mostly asleep and moaning - between pain control medication. At this point no nursing service is available so it will be a difficult week - if they don't provide help.

Earlier this week, still in the hospital and when the situation was better, I wrote:

Small victories

• Liam feels better.
• She asks to eat.
• She talks and jokes.
• They were able to correct the problem with the "purple line", the TPN one (which is located between the Red and Blue dialysis lines.  Previously, even though this line was ok one way (in) so she was able to receive her TPN supply,  they weren't able to draw out of it - to check her blood.  As a result, every time they needed blood, they stuck a needle.)

Perspective

It's late in the evening.  Liam moans, but it's not too bad.  We read a book together.  She recognizes my voice and the book and immediately her eyes shine and her face shows interest.  She participates in the reading by completing each line.  She memorized the entire book - several of them, to be accurate.  
The nurses arrive to cath' her.  Usually this is a part where she'd complain more and tense her body - understandably (who in their right mind like it when others access their most private areas???) - which makes it so much more difficult for them to do their job.  This time, however, she could care less.  She's feeling well and reading the book and jokes.  The nurses can't believe it.
And I'm thinking:  This girl has all the reasons in the world to be bitter and upset and frustrated.  For months now her entire world is in bed or in a hospital room.  She "lives" (the little of it) in between pain control medications.  Foreign people touch here everywhere.  Her entire rich life miniaturized to the confinement of her hospital bed.  Yet, she still finds happiness and joy in the small things.  She doesn't ask questions.  She doesn't speculate "what if".  She doesn't look at the grass on the other side of the fence.  She simply lives the moment and get the best out of it.  How simple.  And if it's so simple for her, with all the hardship she's going through, how come it's so difficult for the rest of us to do?