A 2nd night at home. The pain is intensified. Liam's miserable. The only time she's not in pain, is when she's asleep (or drugged out). OOOOWWW is the first thing she's saying as soon as she wakes up. Rachel's trying to get help from the pain team. The thought of that these are first days out of the hospital and adjustments are needed.
Can't help but admire Rachel again and again and again. She's the day nurse and and the night nurse and the case manager and most of all, mom. It could be overwhelming for anybody, but Rachel plows through it all with a cool head while Liam is screaming out of pain for hours and with little sleep on top of everything.
I wrote the above this morning. What is it today? Wednesday, ok. Now we're entering the 3rd night at home. Liam went tp dialysis today. Came back OOOOWWWWWie at around 6. The pain Drs and Rachel are trying to tweak when to give what and how much. Around 8 gave her her evening medications and turned her on her side. She's sleeping well since. There two frustrating things to me:
1. That she's in so much pain.
2. That the only way to relieve her of her pain is to drug her out heavily into sleep. We will be watching this in the next few days.
About to hit the hay. There's no telling what kind of night is ahead of us.
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