Yesterday, Tuesday, was a good day for Liam. She joked and talked almost like the good, old Liam. She's still in pain in between medication, still complaining, but for a while she surprised everybody and was her old self - talking about food, restaurants, etc. We find it quite amazing that after all she's been through, her spirit is so high the minute she gets a break from the pain.
"Asher", that's what she calls me when she wants to laugh at me. Not Abba, Asher. She knows I will "get angry", and that's exactly what she's after. So when I got to the hospital yesterday and sat down, all of the sudden I hear a soft 'a-s-h-e-r', and a shadow of a smile extends from the corners of her mouth to signal just that - that she's kidding me. THIS IS SOMETHING SHE HASN'T DONE IN SEVERAL MONTHS!!!
Then I lowered my head to her bed. Back when Liam was healthy, she loved hitting my bald head. Her hand went up and....tap, tap,tap....ever so slightly, but hit me she did. And there's no greater gift in the whole world!!!
Last night, though, was miserable. Liam was in pain and restless all night long. No medication was able to relieve her from her discomfort. Neither she nor Rachel got any sleep.
Wednesday, 3/3
Today Liam had a surgery to internalize the shunts. They pulled the right side shunt altogether for it wasn't draining anything. The left one they inserted into a vein, rather than dumping it in the belly. The surgery went well. Back from the OR Liam was resting now comfortably the entire afternoon. In the evening she woke up in severe pain again: from the surgery itself (I don't know how many surgery scars she has on her head by now...many), and from new IV needles stuck in her arm. Hoping for a good night.
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