Sunday, January 3, 2010

still crazy (after all this Ritalin)

Liam is extremely agitated the past 24-36 hours.   She hardly slept at all and is constantly complaining - AAAAWWWWOOOO, AAAAAAAAWWWWWWWOOOOOO - non-stop nearly 24 hours a day.   It's impossible to calm her down.  Since Liam is not verbal when she's not well, it's impossible to know what's bothering her.  Her urine and blood look good.  Her breathing is fine.  In the rare moments that she's asleep, her blood pressure and heart rate are good.  But, in most of the time when she's agitated both of them are too high.  We think - and it's only a theory at this point - that the Ritalin they gave her to encourage brain activity and better breathing, is the culprit.  So last night it was decided to stop it altogether.  I spent the night with her.  We never slept - maybe 20 minutes here or there.  But this morning the medical staff made a mistake and GAVE HER RITALIN AGAIN!!!!  This is why she's so crazy as I'm writing these words (live from Egleston).  The problem is that they don't want to give any calming medication, such as Valium, in fear of suppressing her breathing.  Tylenol etc don't do squat.
And that's the news from the hospital this Sunday morning.  I wish I could deliver better news, but that's the situation.  The error the Drs made is extremely frustrating.  At the same time and just to be fair, remember that I mentioned that the Ritalin is just a theory.  Liam has multiple issues so we have to be open minded about other things.

And how did I feel when I learned about the Ritalin error from the Dr?  I wasn't angry at all.  The moment I learned about it it already belonged to the past.  There was nothing I could do to reverse it, so why get angry?  I felt terrible for Liam.  She tries so hard to relax and she can't.  It's beyond her control.  Later, when it sunk in, I also felt a huge disappointment.  And, I want to make sure such errors never occur again - either with Liam or other kids.   
To be continued..... (at some point)

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