Puff

Not sure if it can be seen in the picture below, but Liam is really puffed up.  It started from the belly (which is HUGE now) and spread throughout the body.  The explanation (or assumption) is that the kidneys don't filter the fluids good enough and thus don't send them downstream to the urine system.  So the fluids are going "where they can".  They give her medication to help with this - and indeed today she looks a bit better - but it's not enough [yet].  Even though she passed urine better today, she's still very puffy.  More options are being studdied these days.

Somebody asked me about our daily life as a family.  Well, we don't live as a family now.  Liam and Rachel are in the hospital.  Rachel is there nearly 24 hours a day.  We're trying to relieve her for a few hours every day, but it's not always possible. When I arrive in the hospital in the evening directly from work, this is our chance of catching up.  But too often we can't even do that as it's time for me to take over and for Rachel to get some relief.  There are some very important things we need to talk about, which we put on the shelf again and again simply due to lack of time or privacy.  Luckily we have a good family and friends who help when they can.  We're thankful to all.
Meitav leaves home at 7 am and returns between 8-9 pm after school and dance programs.  She works extremely hard.  And then when she gets home tired and all, her family is not there to greet her.  Iy must be tough.
I really have it the easiest of all.  Work is easy compared to what everybody else do.