A night at the museum

Ehhhh, at the hospital.....

5pm:  A visit to radiology for a GJ-tube scan.  The Dr was hoping that a blockage or narrowing was found.  That would have explained a lot - maybe.  But, "unfortunately" all the tube systems are functioning well.  Good news, but keeps the mystery alive.

6-7:  Liam sat quietly in her wheelchair, "watching" TV.  The TV is turned on 24 hours a day playing Curious George in an infinite loop.  Liam likes it.

7pm:  The nurses change Liam's diaper, treat her bed soar.  None of this is fun for her.

8: Nurse from the new shift came in.  Fotzed around with stuff.  Laim's almost asleep.

9-ish: I fell asleep.

9:30:  They came to cath her.  She fell sleep soon after.  So did I.

3:15 am:  I woke up.  WOW, we slept for nearly 6 hours straight!!!  The first time in a week or so.  That's good news.  At the same time, we'll have to keep an eye on it.  Liam got lethargic before.


4-7 am:  Liam half dozed off, half complained, half stayed quite and listend to the TV (how many halves do we have already?)  Every time she complained I read to her from Charlotte's Web.  She relaxed quickly and dozed off again.  I went to bed myself.  But, as soon as I was ready to shut my eyes off, Liam complained.  So I would read to her again.  And that's how it continued again and again and again (that's how Liam is on a normal basis:  she would be quite until I'm stick my fork in my meal or shut my eyes or go online....and exactly them she would complain to get my attention...somehow she senses what's going on).  Until sometimes around 6am we both fell asleep - I think.  I woke up around 7 when an alarm went off in one of the many instruments around her bed.  By the time I found the nurse to take care of it, we were both wide awake.

And then the night became a new day.  The day would be similar as far as Liam concerned.  For us there are a few Dr visits, a few people visiting, meals, etc.  Maybe we would put her in her wheelchair for several hours and walk the hallway.