Time to think and plan ahead

Vomiting continues and the high blood pressure returned.  But otherwise Liam is pretty well.  She's awake, alert, her spirit is high.  Despite not being in a life threatening situation any more, we're still in ICU.  Maybe [or hopefully] due to the intensive vomiting.  Now that the rest of the issues are under control, give or take, it's really time to focus on the vomiting - a more than a year old problem.

It is also time for Rachel and I to have one of the most difficult talks of our life.  12 days ago Liam almost said goodbye for good.  Even though she's much better now, we know that the critical situation could return any moment.  It is very possible that sometimes in the future we will have to make some difficult decisions:  put her on a 24/7 ventilator or not?  Keep her around no matter what or let her go at some point, and when?   These are not typical things parents normally discuss about their kids.  But, it's important to have this conversation in a calm time when we can think clearly.  That way if the situation arises, we will be better prepared - hopefully.