The big picture

The big picture is that after so long of relatively good health, Liam's condition clearly deteriorated in the last year.  It started with nightly vomiting.  In early September 2009, when we learned about the high blood pressure and the kidneys, we realized that Liam is very sick.  This was new to us.  Despite her many disabilities and limitations (and even health issues), we always considered her as a healthy child.  Following these findings in early September, additional problems were discovered - which I already mentioned in the blog:  a shunt problems (which was corrected through a surgery in October 2009); respiratory issues, which we knew about before, but have worsened; low blood pressure as oppose to the high blood pressure which was discovered a few months ago (in other words, blood pressure fluctuation); seizures.
In light of all the above the question that we keep asking ourselves is if Liam's body is shutting down.  Is it too tired?  Is the brain too damaged to control the body?
In a recent conversation with her neurologist, she said that considering the way Liam's brain was at berth, considering 7 months of seizures, considering all the surgeries - it's quite amazing the things that  Liam was ABLE to do:  drive her wheelchair, feed herself, go to school, enjoy life.  Again we're asking ourselves if we saw the best of her.  Not that the future was any clearer before, but now the fog is much heavier.