How good is it to be home?

Leaving the hospital is good.   And it's definitely good to be together as a family at home again - for the first time in months.  At the same time, Liam was released from the hospital not because she got so much better there, but because she reached a plateau.  We have to try feeding her via the G-tube for several weeks to see if it's working for her.  By "working" I mean that she'd be able to sustain the liquid food.  If so, then we have a winner; if not, then we have to go back for more exploration.

Liam is very sleepy in the last few days.  She was fed via an NJ-tube (nose to intestine - bypassing the stomach).  With it, we have little to no vomiting.  The plan was to leave the NJ-tube intact even after the installation of the G-tube and to gradually shift her feeding from the NJ to the G.  But, during the G-tube procedure the surgery crew made a mistake and pulled the NJ out.  Nobody realized it until Liam was back with us and awake.  With the NJ out it was decided to try feeding her via the G, very gradually.

It went ok during the day - again, Liam was uncharacteristically sleepy.  At evening feeding reached 40 ML, the minimal amount enough to sustain Liam.  At 8 PM we were released.  As soon as we got home Liam started vomiting or rather gagging badly.  It continued for several hours until we turned her on her side - with the intention that the vomit wouldn't choke her.  She fell asleep and surprisingly slept most of the night peacefully.  As soon as she woke up, the gagging/vomiting resumed.

The same pattern continued today - Thanksgiving day.  We also detected high fever.  Is she sick a "normal" sickness or it it related to the rest of the whatever-it-is?  Too difficult to know.  Hopefully, the next few days will tell us more.  So it's a bit stressful here, to say the least.  Just hoping for a quite and peaceful night.

I'm not the kind of guy who normally say "this year I'm thankful for so-and-so" (although I do say thank you when somebody puts a beer in my hand and football on the screen).  I think that thanks and appreciations are a private matter and are expressed in the heart.  However, this year I'm diverting from my habit and giving a public thank: I'm thanking the medical staff who worked well with us to keep her alive; I'm thanking all the support from family and friends; I'm thankful to Liam that she's still with us.