The Perfect Storm

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Saturday was a good day for Liam.  As the Drs were discussing different strategies to treat her multiple infections and the complication with the TPN line, Liam started feeling better already.  She talked a bit, smiled a bit, even went outside.

However, the night between Saturday and Sunday was not good.  It was not as bad as the worst nights we had together, but was still unrestful (calm down.....even though my spell checker flags "unrestful", it turns out it IS a valid word).  She didn't sleep much - only cat naps here or there - moaning all night long.  Nothing helped her:  no medication, no change in position, no change in entertainment.  


Then, at 4:30-ish AM, things started to intensify a bit.  Just then, wouldn't you know it, I received a call from work which required me to be on the phone-computer for the next 2 hours - after a sleepless night and with Liam needing me.  That was difficult, frustrating, stressful (even though I'm on call, Rachel got the night off as she needed the rest to take Meitav to camp....we gambled that I wouldn't get a call and we lost).

And this is where we're at on Sunday morning.  Moaning out of a shallow sleep.