Saturday, July 10, 2010

Liam is home

My Spin For Kids campaign. Thank you.

Saturday:  Earlier today Liam was discharged from the hospital.  As of Saturday night, she's 24 hours now with no pain and in good mood.

Ironically, when Liam was ready to be discharged - on Friday PM, none of the providers was.  Let me explain:  Preparing for Liam to be at home is a complex operation.
  • Private providers have to deliver medicine "pump" - an electronic way to squeeze a syringe really slow into the leadline (the line that goes into her vein).
  • They need to train us in using the device.
  • Another delivery is for the TPN - the "food" stuff that goes also into the same leadline.
  • Nursing service has to be scheduled and put into place.
Usually the limiting factor is Liam.  We don't know really until the last minute whether she would be well enough to go home or not.  So Rachel worked with several provoders over he week to prepare and be ready for a possible Friday discharged.  But when Friday PM case and Liam was ready to go home, we discovered that none of the providers did their part of the deal.  It was very frustrating.

To make a long story - no really, a really long story - short, somehow things worked out.  As told above, we brought Liam home on Saturday AM.

Beyond the news:

How do you feel, Liam?
When everybody pets you?
And kiss you? (which makes me want to cleanse you before I kiss you to stay away from their germs.)
And when they flip you over?
And when they roll you this way and that?
And when they undress you?
And clean you?
And everybody touching you whereever they want?
And they stick you?
And poke you?
And when you're too weak to even raise your hand to scratch your face?
Or too weak to tell people to get the hell out of your face?

How do you feel?

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