"Home sweet home"

The above title is a lame attempt to be sarcastic.  
Unfortunately, coming home The night between Friday-Saturday was extremely rough.  Liam vomited many times and gagged many more.  Her breathing was not good.  We had to attend to her all night long and do many rounds of laundry in between.  So, as sweet as home is, it is far from easy.  We have to play  the roles of Dr's, the nurses, the janitors, and many other roles - as well as parents.  And we have to make difficult decisions:  Is she too sick to stay home?  Is she breathing enough or do the monitor gives a bad read?  Is her blood pressure too high?  This is just a sample of the many questions we face during the day - and most critically, during the night. 

Our mini-hospital room now includes:
An oxygen machine
The feed pump
A pulse and oxygen saturation level monitor
A suction machine (to help clean her mouth from vomit)

Meitav sleeps in our bed while one of us "sleeps" (yeah, right) in the room with Liam.